Personal Genetics Education Project

New mini-lesson on Mitochondrial Replacement Therapy

Mitochondrial replacement therapy (MRT) is a new technique that enables prospective parents to avoid passing down certain serious medical conditions, called mitochondrial diseases, to their children. This therapy has drawn media attention in recent years, as scientists, ethicists, policymakers, and families discuss and debate its use in humans. Indeed, you may have come across the […]

Roadtrip to Cleveland, OH

In early October, pgEd and the members of Ting’s research lab got on a bus to Cleveland, OH. On our way West, we visited Howe Cavern and spent a night at Niagara Falls. The sightseeing was spectacular and the trip was a great opportunity to strengthen the bonds between pgEd and some of the scientists […]

See you at American Society of Human Genetics (ASHG) October 15-19, 2019!

pgEd’s Marnie and Nadine are presenting a breakfast workshop at ASHG on Wednesday, October 16th at 7:15am. Check out our abstract below, and meeting details are here: https://www.ashg.org/2019meeting/ We are looking forward to a lively conversation! —— Over the past 2+ years, deep-rooted racial and cultural tensions have risen to the surface across the United […]

Privacy and informed consent: “Operation Double Helix” charges 35...

Even with a good understanding of informed consent and an awareness of the risks and benefits of genetic testing, there are unfortunately ways in which well-meaning people, hoping to use genetic testing to improve their health, can run into problems. The US Department of Justice has charged 35 people with fraud, alleging doctors and others […]

pgEd wraps up 2019 Summer Tour!

The pgEd team was busy this summer, getting out and talking to people about genetics and all the ways it may impact their lives.  Between June and August, we hosted or participated in teacher workshops in Alabama, Maine, Massachusetts, Nebraska, South Dakota, Texas, and Wisconsin. We appreciate all the teachers who took some time from their summer vacation to spend with us, and […]

How are patients being impacted by new genetic therapies?

With the advent of CRISPR and the hopes associated with using genetic engineering to treat genetic diseases, it is challenging to keep up with the many reports of clinical trials, FDA approvals, and families hoping for help thanks to the use of gene therapy and gene editing. After years of research, several clinical trials are […]

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