Personal Genetics Education Project

Rare disease, a family’s story and the power of social media

Seth Mnookin published a great story in the New Yorker about the Might family and their quest to understand their son’s unusual medical condition. In addition to highlighting the role genome sequencing can play in finding a diagnosis and informing medical treatment – still a frustratingly rare occurrence for families who are seeking answers – Mnookin also tackles a number of thorny issues, such as how publication practices can impact patient access to information.  He also highlights the ways in which the Might family and others have used social media to connect with and empower families in similar situations.

One of a kind: What do you do if your children has a condition that is new to science?

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As pgEd's calendar starts filling up for 2020, let's have a look at some highlights from last year's events. ... See MoreSee Less

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A behind the scenes peek of the movie ANYA!

pgEd collaborated with the filmmakers to provide insights on ethical issues related to genetics. We're excited for the film to promote conversations about genetic technologies.
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Posted by pgEd 1 month ago

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Thanks for sharing! We're scheduling free Skype Q&As all day 2/20/20 in celebration of ANTHRODAY. And have a discount code as well.

Three great options to celebrate #AnthroDay2020 (2/20/20) with ANYA, a modern science and fiction drama grounded in genetics and anthropology. Option 1: Watch ANYA for 20% off between 2/18-2/25 at vimeo.com/ondemand/anyamovie with coupon code ANYA2020. Option 2: Join in the online discussion at 2/18-2/25 athttps://www.facebook.com/events/165431928023472/ Option 3: Schedule a free Skype Q&A anytime 2/20/20 with ANYA's co-creator, anthropologist Carylanna Taylor. Great for a classroom discussions! Message us or email info@1efilms.com to schedule.

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