pgEd Year in Review 2020 has been a year like no other. Like many of you, the team at pgEd had to make adjustments to our typical way of doing things and find new ways to engage. In spite of the challenges caused by COVID-19, we were able to host workshops, forge new partnerships and […]
Privacy and informed consent: “Operation Double Helix” charges 35...
Even with a good understanding of informed consent and an awareness of the risks and benefits of genetic testing, there are unfortunately ways in which well-meaning people, hoping to use genetic testing to improve their health, can run into problems. The US Department of Justice has charged 35 people with fraud, alleging doctors and others […]
pgEd wraps up 2019 Summer Tour!
The pgEd team was busy this summer, getting out and talking to people about genetics and all the ways it may impact their lives. Between June and August, we hosted or participated in teacher workshops in Alabama, Maine, Massachusetts, Nebraska, South Dakota, Texas, and Wisconsin. We appreciate all the teachers who took some time from their summer vacation to spend with us, and […]
How are patients being impacted by new genetic therapies?
With the advent of CRISPR and the hopes associated with using genetic engineering to treat genetic diseases, it is challenging to keep up with the many reports of clinical trials, FDA approvals, and families hoping for help thanks to the use of gene therapy and gene editing. After years of research, several clinical trials are […]