Personal Genetics Education Project

How are patients being impacted by new genetic therapies?

With the advent of CRISPR and the hopes associated with using genetic engineering to treat genetic diseases, it is challenging to keep up with the many reports of clinical trials, FDA approvals, and families hoping for help thanks to the use of gene therapy and gene editing. After years of research, several clinical trials are […]

Sex, gender and genetics: Download our information brief

As part of pgEd’s ARC (Building Awareness, Respect, and Confidence through Genetics) project, funded by a Science Education Partnership Award from the National Institutes of Health, pgEd has been developing new, interdisciplinary curricula on genetics and identity. One of the topics being tackled in these materials is sex and gender. We have now produced a […]

Recognizing Dr. Bill Jenkins and his work to end the Tuskegee Syphilis Study

Last month, Dr. Bill Jenkins passed away at age 73. The New York Times has written about his life’s work to improve the safety and health of African Americans and others, and highlights his role in bringing to light the horrors of the Tuskegee Syphilis Experiment. Teachers might want to share this obituary with students […]

pgEd Mini-Lesson on the CRISPR-edited twins

In November 2018, Chinese scientist Dr. Jiankui He reported that two children, whose genomes were edited using CRISPR technology during their embryonic stage, had been born. The news took many scientists and the rest of the world by surprise, and drew much controversy about whether Dr. He’s research was scientifically and ethically appropriate. All the […]

Genetics, ancestry and health: Download our information brief

As part of our Congressional briefing, “The Common Thread: What genetics tells us about ancestry, health, and personal identity,” we have created an overview of the topics that will be addressed by our panelists. Authored by pgEd’s Director of New Initiatives, Dr. Johnny Kung, this document presents the key scientific concepts behind how ethnicity and ancestry […]

Golden State Killer and DNA databases: Dr. Johnny Kung’s interview

With the arrest of a suspect in the case of the notorious Golden State Killer, aided in part by the use of a genealogy website called GEDMatch, questions of privacy and consent around DNA are front page news. While details of the investigation have not been completely released, the basic outline is likely to be […]

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