Personal Genetics Education Project

Book corner: Families in face of deadly inheritance

Two recently published books, “The Family Gene” and “The Inheritance“, explore a similar theme – what does one do in the face of a deadly inherited genetic condition that is afflicting multiple members of one’s family? The families at the center of these two stories – one affected by a fatal liver condition that still doesn’t have a […]

New Lesson Plan: Genome Editing and CRISPR

pgEd is thrilled to launch our newest lesson plan, “Genome Editing and CRISPR.” In the past few years, rapid development in a series of genetic technologies, most notably CRISPR, has made it easier than ever before to make targeted changes to genomes. The potential application of these technologies for treating diseases, such as sickle cell anemia […]

In the News: First report of baby born with mitochondrial replacement

As researchers, ethicists, policymakers and the broader public continue to debate whether gene editing should be used to modify human embryos, another procedure that would result in genetic changes being passed on to future generations (a situation called “germline genetic modification”) seems to have moved forward. It was reported this week that the first baby […]

In the News: Clinical use of CRISPR takes a step forward

This week, the Recombinant DNA Research Advisory Committee, an advisory body to the US National Institutes of Health, gave its go-ahead to the first clinical trial of the gene editing tool CRISPR-Cas9 in humans. While the trial must still be approved by the Food and Drug Administration and other ethics review bodies, it represents another […]

In the News: Synthetic Genomes, Gene Drives, and Human-Pig Chimeras

  A number of developments in the past few weeks brought to the forefront various issues related to the ethical and social implications of novel genetic technologies, public engagement in science, and democratic deliberation about controversial research. On June 2nd, a group of scientists and entrepreneurs published a proposal to synthesize an entire human genome from […]

In the news: First optogenetics trial in humans to go ahead

You might have caught the reference to something called “optogenetics” in a January episode of the hit CBS series Limitless. Next month, a clinical trial in Texas will test whether optogenetics can restore vision to individuals with the degenerative disease retinitis pigmentosa. Whether this trial is successful will have implications far beyond the treatment of blindness. Optogenetics […]


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