Rare disease, a family’s story and the power of social media

Personal Genetics Education Project - pgEd.org

"She asked the room to raise their hands if they have health insurance. Nearly everyone put an arm in the air. In most of the communities she works with, Romero only gets about a third. “How do I talk about Crispr when people won’t have access to it, even when there are treatments available?” she asked the crowd. " - pgEd's Florcy Romero quoted in this great article from Wired describing the range of ideas and voices that were at #CRISPRcon this year. ... See MoreSee Less

Crispr Fans Fight for Egalitarian Access to Gene Editing

wired.com

The applications of gene editing tech will be shaped by the values of the societies that wield it.

Posted by pgEd 1 week ago

Personal Genetics Education Project - pgEd.org

pgEd has been at #CRISPRcon the last two days, and is so thrilled to have partnered with Keystone Policy Center to help shape the content and panels of the meeting. Read more about what's been happening at the conference, and as always, check out of website if you are looking for more information. ... See MoreSee Less

At CRISPRCon, talk of designer babies, IP fights, and scientific colonialism

statnews.com

CRISPRcon brought hundreds of academics, industry scientists, and public health officials to Boston this week to talk about issues being raised by the game-changing technology.

Posted by pgEd 2 weeks ago

Personal Genetics Education Project - pgEd.org

pgEd is back in Washington DC for our 6th Congressional briefing, on the topic of genetics, ancestry and health. We've created an overview of some of the key scientific concepts behind how ethnicity and ancestry are analyzed from a genetics perspective, and how our health is shaped by genes, ancestry and the environment - great for people coming to the briefing tomorrow or for anyone interested in the topic. ... See MoreSee Less

Posted by pgEd 1 month ago

Personal Genetics Education Project - pgEd.org

What are the potential benefits of, and concerns about, genetic tests being sold directly to consumers? Check out pgEd's lesson plan on Consumer Genetics, newly updated for 2018! #DNADay18 #15for15 ... See MoreSee Less

Lesson Plans – pgEd

pged.org

The Personal Genetics Education Project raises awareness and sparks conversation about the potential benefits as well as the ethical, legal, and social implications of personal genetics. We strive to ...

Posted by pgEd 2 months ago

Personal Genetics Education Project - pgEd.org

CRISPRcon is a public forum for dynamic and engaging conversations about the questions that gene editing poses for society, the environment, and our broader world. This year, it will take place June 4-5 in Boston. Reserve your ticket today! ... See MoreSee Less

CRISPRcon – June 4-5, 2018 / Boston, Massachusetts

crisprcon.org

The mission of CRISPRcon is to bring together diverse voices to discuss the future of CRISPR across all applications.

Posted by pgEd 3 months ago