Personal Genetics Education Project

Debating direct-to-consumer genetics and medical ‘paternalism’

How much background is needed to make sense of genetic analysis? How to people react to such information? Do we need to think differently when talking about direct-to-consumer analysis versus the type of information one is likely to receive in the medical arena from a certified genetic counselor?  These questions come up whenever pgEd is talking with students, and even in our more informal conversations with friends, colleagues and neighbors.  Recently, several writers have tackled some of these questions, with sometimes divergent conclusions. We appreciate the nuanced arguments both Virginia Hughes and Laura Hercher make in their articles.  We think these pieces also could find a place in the classroom, maybe to augment our lesson about “direct-to-consumer genetic testing.”  We could also see teachers finding these pieces great as background reading ahead of teaching almost any of the pgEd lessons.

Virginia Hughes in Slate: It’s Time to Stop Obsessing About the Dangers of Genetic Testing 

Laura Hercher (via David Dobbs’ Wired blog): The Case for Paternalism in Genetic Testing

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National Society of Genetic Counselors annual conference

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Columbus OH
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Duke panel on Orphan Black

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In the News

As we finish up another week of Teaching the Genome Generation at the Jackson Lab in Bar Harbor Maine, teachers are excited to receive a copy of David Epstein's "The Sports Gene". pgEd loves leading the social and ethical dimension of this annual professional development course. Looking for some summer reading? Check out pged.org/book-corner/ ... See MoreSee Less

Posted by pgEd 7 days ago

As we finish up another week of Teaching the Genome Generation at the Jackson Lab in Bar Harbor Maine, teachers are excited to receive a copy of David Epsteins The Sports Gene. pgEd loves leading the social and ethical dimension of this annual professional development course.  Looking for some summer reading? Check out http://pged.org/book-corner/

What a wonderful three days at our Summer Institute! Thanks to our friends at Brockton High School for hosting us, and to all the teachers who came and shared their energy, passion and ideas. There will be lots for pgEd to get inspirations from as we develop our new unit of lessons on genetics and identity.
See everyone at our next workshop in Boston in less than two weeks!
... See MoreSee Less

Posted by pgEd 3 weeks ago

What a wonderful three days at our Summer Institute! Thanks to our friends at Brockton High School for hosting us, and to all the teachers who came and shared their energy, passion and ideas. There will be lots for pgEd to get inspirations from as we develop our new unit of lessons on genetics and identity.
See everyone at our next workshop in Boston in less than two weeks!

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