Personal Genetics Education Project

Privacy and informed consent: “Operation Double Helix” charges 35...

Even with a good understanding of informed consent and an awareness of the risks and benefits of genetic testing, there are unfortunately ways in which well-meaning people, hoping to use genetic testing to improve their health, can run into problems. The US Department of Justice has charged 35 people with fraud, alleging doctors and others […]

pgEd wraps up 2019 Summer Tour!

The pgEd team was busy this summer, getting out and talking to people about genetics and all the ways it may impact their lives.  Between June and August, we hosted or participated in teacher workshops in Alabama, Maine, Massachusetts, Nebraska, South Dakota, Texas, and Wisconsin. We appreciate all the teachers who took some time from their summer vacation to spend with us, and […]

How are patients being impacted by new genetic therapies?

With the advent of CRISPR and the hopes associated with using genetic engineering to treat genetic diseases, it is challenging to keep up with the many reports of clinical trials, FDA approvals, and families hoping for help thanks to the use of gene therapy and gene editing. After years of research, several clinical trials are […]

Sex, gender and genetics: Download our information brief

As part of pgEd’s ARC (Building Awareness, Respect, and Confidence through Genetics) project, funded by a Science Education Partnership Award from the National Institutes of Health, pgEd has been developing new, interdisciplinary curricula on genetics and identity. One of the topics being tackled in these materials is sex and gender. We have now produced a […]

Recognizing Dr. Bill Jenkins and his work to end the Tuskegee Syphilis Study

Last month, Dr. Bill Jenkins passed away at age 73. The New York Times has written about his life’s work to improve the safety and health of African Americans and others, and highlights his role in bringing to light the horrors of the Tuskegee Syphilis Experiment. Teachers might want to share this obituary with students […]

pgEd Mini-Lesson on the CRISPR-edited twins

In November 2018, Chinese scientist Dr. Jiankui He reported that two children, whose genomes were edited using CRISPR technology during their embryonic stage, had been born. The news took many scientists and the rest of the world by surprise, and drew much controversy about whether Dr. He’s research was scientifically and ethically appropriate. All the […]

Archives