Personal Genetics Education Project

Book corner: Families in face of deadly inheritance

Two recently published books, “The Family Gene” and “The Inheritance“, explore a similar theme – what does one do in the face of a deadly inherited genetic condition that is afflicting multiple members of one’s family? The families at the center of these two stories – one affected by a fatal liver condition that still doesn’t have a name, the other by early-onset Alzheimer’s disease – face a series of personal, family, emotional and ethical issues through their harrowing journeys. But both families have also been actively involved in research efforts to figure out the genetic causes and, hopefully one day, cures for their conditions, even if they themselves may not live to directly benefit from the research.

The Chicago Tribune discusses these two books in: ‘For us, this means hope’: Exploring the promise of genomic medicine

Upcoming Events

Fri 27

Inclusive SciComm Symposium

September 27 - September 29
Kingston RI
United States
Oct 15

ASHG Annual Meeting 2019

October 15 - October 19
Houston TX
United States
Oct 22

pgEd is crossing the Atlantic Ocean

October 22 - October 25
Heidelberg
Germany

Newsletter